Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry — Stella

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Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry — Stella

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Recruiting

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Trial locations(1 site)

United States

University of Rochester Medical Center, Department of Neurology, Rochester, New York

Key details

Sponsor

University of Rochester

Collaborators

National Institute of Neurological Disorders and Stroke (NINDS)

Enrollment target

~3,000 participants

Started

September 2000

Primary completion

June 2028

Last updated October 2025

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