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Orphan Europe Carbaglu® Surveillance Protocol — Stella

Home/N-acetylglutamate Synthase (NAGS) Deficiency/Orphan Europe Carbaglu® Surveillance Protocol

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Orphan Europe Carbaglu® Surveillance Protocol

Trial locations(3 sites)

United States

Children's National Medical Center, Washington D.C., District of Columbia

Children's Hospital Boston (UCDC New England Center), Boston, Massachusetts

Icahn School of Medicine at Mount Sinai, New York, New York

Key details

Sponsor

Nicholas Ah Mew

Collaborators

Boston Children's Hospital, Icahn School of Medicine at Mount Sinai

Enrollment target

~30 participants

Started

April 2012

Primary completion

July 2026

Last updated February 2024

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