International CDKL5 Registry — Stella

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International CDKL5 Registry — Stella

Home/CDKL5 Deficiency Disorder (CDD)/

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Recruiting

Back to CDKL5 Deficiency Disorder (CDD) trials

Trial locations(1 site)

United States

University of Pennsylvania Orphan Disease Center, Philadelphia, Pennsylvania

Key details

Sponsor

University of Pennsylvania

Collaborators

Loulou Foundation, International Foundation for CDKL5 Research

Enrollment target

~500 participants

Started

December 2018

Primary completion

December 2028

Last updated October 2025

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