Natural History Study of Participants With Sanfilippo Syndrome Type IIIC — Stella

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Natural History Study of Participants With Sanfilippo Syndrome Type IIIC — Stella

Home/Sanfilippo Syndrome Type C/

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Recruiting

Back to Sanfilippo Syndrome Type C trials

Trial locations(2 sites)

United States

The University of Texas Southwestern Medical Center, Dallas, Texas

France

Hospices Civils De Lyon, Bron

Key details

Sponsor

Phoenix Nest

Collaborators

Vaincres Les Maladies Lysosomales, Association Sanfilippo Sud

Enrollment target

~30 participants

Started

November 2024

Primary completion

July 2027

Age range

12 Months and older

Last updated August 2025

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