Recruiting

Understanding Stroke in Babies and Children Worldwide

Plain-English translation of NCT00084292 on ClinicalTrials.gov ↗ · Source last updated May 2025 · Translation generated July 2026 · How we translate trials

What is this trial?

This is a worldwide research study that gathers medical information from babies and children who have experienced a stroke or conditions that put them at risk for stroke. Researchers at over 150 hospitals and clinics across multiple countries are collecting detailed health records, imaging scans, and follow-up information to understand how childhood strokes happen, what causes them, and what treatments work best. This large database of real patient experiences will help doctors design better treatments and clinical trials in the future.

Stroke in children is rare but serious, and doctors know much less about it than stroke in adults. By collecting information from thousands of children with stroke across the world, researchers hope to identify patterns, understand what causes these strokes, and ultimately improve how doctors prevent and treat them.

Do you qualify?

You likely qualify if…

your child is between birth and 18 years old
your child has been diagnosed with an ischemic stroke (a clot blocking blood flow to the brain)
your child has been diagnosed with a hemorrhagic stroke (bleeding in the brain)
your child has cerebral sinovenous thrombosis (blood clots in veins around the brain)
your child has a condition that puts them at high risk for stroke, such as moyamoya disease, sickle cell disease, or brain arteriovenous malformations
your child's stroke or diagnosis was made after January 1, 2003, and your child is being treated at a participating study hospital

You likely don't qualify if…

your child was premature and has an ischemic stroke or presumed prenatal stroke
your child was diagnosed with a transient ischemic attack (temporary stroke symptoms that resolve quickly)
your child has brain bleeding that resulted from a head injury or trauma
you are unable or unwilling to provide permission for your child's medical records to be shared with the research team

What participation looks like

Your participation mainly involves sharing your child's medical information and brain imaging scans with the research team through a secure online system. You do not need to come to special study visits or receive any experimental treatment—researchers will collect information from your child's regular medical care and follow-up appointments at the hospital where your child is being treated. The study team will track your child's health outcomes over time as part of building this international database.

AI-generated summary from trial data · Jul 19, 2026 · Not medical advice

Understanding Stroke in Babies and Children Worldwide

What is this trial?

Do you qualify?

What participation looks like

Trial locations(1 site)