Plain-English translation of NCT00196742 on ClinicalTrials.gov ↗ · Source last updated · Translation generated ·
This is a long-term registry — a database that collects health information — for people diagnosed with Fabry disease. Researchers are tracking how the condition progresses in different people and how treatments like Fabrazyme work in real life. There's no experimental medication to take; instead, you receive your regular doctor's care while sharing information about your health.
Fabry disease affects each person differently, and doctors need better information about how the condition develops over time and how current treatments work in everyday practice. By collecting health data from many patients, doctors can learn how to monitor the disease better and improve care for everyone with Fabry disease.
You likely qualify if…
You likely don't qualify if…
You will continue receiving your regular medical care from your doctor. Your doctor will perform routine clinical assessments and monitoring as they normally would. Your medical information — and, if you're pregnant, information about your pregnancy and your baby's health — will be collected and shared with the research team to help build the registry database. There is no experimental treatment involved.
AI-generated summary from trial data · Jul 12, 2026 · Not medical advice
United States