Plain-English translation of NCT01638130 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This research study wants to understand what life is really like for people with high-grade gliomas (a serious type of brain tumor) and the people caring for them. Researchers will have one-on-one conversations with patients and caregivers to learn about their experiences, challenges, and what kinds of support would help them most.
Healthcare teams want to provide better care and support to patients with brain tumors and their families, but they need to understand what patients and caregivers actually go through day-to-day. This study fills that gap by listening directly to people living with this diagnosis.
If you qualify, you would be asked to take part in a one-on-one interview where a researcher asks you open-ended questions about your experiences, challenges, and needs. The interview is conversational and allows you to share your story at your own pace. Researchers will use what they learn from all the interviews to better understand how to support patients and families facing this diagnosis.
AI-generated summary from trial data · Jul 3, 2026 · Not medical advice
Belgium
Enrollment target
~30 participants
Started
February 2011
Primary completion
July 2025
Age range
18 Years and older
Last updated on clinicaltrials.gov in July 2024.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Wendy Sterckx
Universitaire Ziekenhuizen KU Leuven