Plain-English translation of NCT01662453 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Researchers at NYU Langone Health are studying sudden unexplained deaths in people with epilepsy—a rare but serious outcome that we don't yet fully understand. This study compares the medical information of people with epilepsy who have died suddenly with living people who have epilepsy, to identify patterns and risk factors. The researchers are particularly interested in whether certain epilepsy medications play a role.
Sudden unexplained death in people with epilepsy is rare but devastating, and doctors don't yet know what causes it or how to prevent it. By learning more about the risk factors and what happens in the body, researchers hope to eventually find ways to protect people with epilepsy.
You likely qualify if…
You likely don't qualify if…
If you are in the SUDEP group, your family will be asked to share medical records and information about your loved one's epilepsy history and death. If you are in the control group, you will share your current epilepsy medical information and records with the research team. The study involves reviewing your medical history—there are no medications to take or invasive procedures required.
AI-generated summary from trial data · Jun 13, 2026 · Not medical advice
United States
Sponsor
NYU Langone Health
Enrollment target
~800 participants
Started
June 2011
Primary completion
September 2027
Last updated on clinicaltrials.gov in June 2026.
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Central contact
Abigail Laze
NYU School of Medicine
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