Registry for people with rare and undiagnosed diseases

The Coordination of Rare Diseases at Sanford (CoRDS) is a national registry that gathers health and contact information from people living with rare diseases, uncommon diseases, or undiagnosed conditions. Your information is stored securely and made available to approved researchers who are studying rare diseases. This helps scientists understand these conditions better and develop new treatments.

Rare diseases affect relatively few people, which makes them hard to study. By bringing together information from many patients in one place, researchers can learn more about these conditions and find better ways to help.