Plain-English translation of NCT02435940 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
My Retina Tracker Registry is a patient-led database where people with inherited retinal diseases can securely store their medical history, eye exam results, and family information online. Researchers can then access this anonymized data to study patterns across many patients and work toward new treatments. You maintain full control of your profile and can update it whenever you have new medical information.
Inherited retinal diseases are rare and affect each person differently, making them difficult to study. By gathering information from thousands of patients in one place, researchers can spot patterns, understand disease progression, and identify which patients might benefit from new therapies.
You likely qualify if…
You likely don't qualify if…
You'll create a secure online account and enter your eye disease history, family medical background, and genetic information using simple drop-down menus and guided questions. You can attach medical records to build your personal file. Then, you can ask your eye doctor to add clinical exam results (like vision measurements) through a separate doctor portal. The registry encourages you to update your profile regularly as you have new appointments or health changes, creating a long-term record of how your disease progresses.
AI-generated summary from trial data · Jun 3, 2026 · Not medical advice
United States