Development and Validation of Patient Reported Outcome (PRO) Measures for Individuals With Neurofibromatosis 1 (NF1) and Plexiform Neurofibromas (pNFs)

Recruiting

Trial locations(6 sites)

United States

Children's National Medical Center, Washington D.C., District of Columbia

University of Chicago, Chicago, Illinois

Johns Hopkins University, Baltimore, Maryland

National Institutes of Health Clinical Center, Bethesda, Maryland

Cincinnati Children's Hospital and Medical Center Institution, Cincinnati, Ohio

Children's Hospital of Philadelphia, Philadelphia, Pennsylvania