Plain-English translation of NCT02817997 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
The ACCELERATE registry is a worldwide project that collects medical information from patients with Castleman Disease to help researchers understand how the disease develops, progresses, and responds to treatment. By sharing your medical records and health experiences, you'll help build a central database that can guide future research and improve care for people with this rare disease.
Castleman Disease is rare, and doctors and researchers don't yet fully understand what causes it, how it progresses in different people, or which treatments work best. This registry was created to gather real-world information from patients around the globe so that researchers can learn more about the disease and develop better treatments.
You likely qualify if…
You likely don't qualify if…
You would enroll online on the registry website and upload your medical records for the research team to review. You'll also be asked to fill out short questionnaires every three months about your symptoms, treatments, and how you're doing. That's it — there are no in-person visits or experimental treatments involved. Your participation helps build a living database that researchers can use to improve understanding of Castleman Disease.
AI-generated summary from trial data · Jun 3, 2026 · Not medical advice
United States
Sponsor
University of Pennsylvania
Collaborators
EUSA Pharma, Inc., Castleman Disease Collaborative Network
Enrollment target
~1,000 participants
Started
October 2016
Primary completion
September 2027
Last updated on clinicaltrials.gov in March 2026.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Joshua Brandstadter, MD, PhD, MSc
University of Pennsylvania
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.