Plain-English translation of NCT02912143 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our Hemophilia A research guide →This is a research database that gathers information from children who have been newly diagnosed with hemophilia (a bleeding disorder where the blood doesn't clot properly). Researchers will collect details about the treatments your child receives, how well they work, any side effects, how your child's joints are doing, and quality of life. This information helps doctors understand what works best for children with hemophilia.
Hemophilia is a rare condition, and doctors need real-world information from many children to understand which treatments work best, how to prevent complications like joint damage, and how to help children live their healthiest lives. This database will help answer those important questions.
You likely qualify if…
You likely don't qualify if…
Your child would be part of a registry that tracks their medical information over time. Researchers will collect data about the treatments your child receives, any complications that happen, joint health assessments, and information about your family's living situation. You won't need to do anything special—the researchers will gather information from your child's medical records and during regular visits to the hemophilia treatment center.
AI-generated summary from trial data · Jun 3, 2026 · Not medical advice
Germany
Collaborators
Society for Thrombosis and Haemostasis Research (Germany)
Enrollment target
~800 participants
Started
January 2017
Primary completion
December 2027
Last updated on clinicaltrials.gov in March 2023.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Christoph Königs, PhD
Goethe University
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.