Plain-English translation of NCT03032835 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This study is creating a special registry and repository—a centralized collection of tissue samples and medical information—from patients who have calciphylaxis, a rare disorder where calcium deposits build up in small blood vessels and skin. By gathering samples and health information from many patients in one place, researchers hope to learn more about what causes calciphylaxis and eventually develop better treatments.
Right now, doctors don't fully understand what causes calciphylaxis or how to treat it effectively. Because the disease is rare, patients are scattered across different hospitals, making it hard for researchers to study it. This study is creating a centralized resource so scientists can collaborate and work toward new treatments.
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As a participant, you would donate tissue or blood samples and allow your medical information to be collected and stored in the registry for future research use. The study is observational, meaning you would not receive any new medication or treatment as part of it—researchers will simply gather samples and information from you to help them understand the disease better. Your samples and data would be stored and potentially shared with other qualified researchers working on calciphylaxis.
AI-generated summary from trial data · Jul 2, 2026 · Not medical advice
United States
Enrollment target
~300 participants
Started
January 2017
Primary completion
December 2030
Age range
18 Years and older
Last updated on clinicaltrials.gov in November 2024.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Sagar U Nigwekar, MD, MMSc
Massachusetts General Hospital
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.