Creating a questionnaire to measure stomach and digestive problems in cystic fibrosis

Researchers are developing a new questionnaire—called the CFAbd-Score—that helps doctors understand and measure stomach and digestive problems in people with cystic fibrosis. This tool will be tested across multiple countries and age groups to make sure it works reliably and captures what patients actually experience. The goal is to create a simple, practical way for you and your doctors to track these symptoms over time.

People with cystic fibrosis often experience stomach and digestive issues, but there hasn't been a reliable, disease-specific way to measure and track them. This questionnaire will help doctors better understand these symptoms and monitor how patients are doing.