Plain-English translation of NCT03131427 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This is a nationwide research registry that enrolls patients diagnosed with inherited or metabolic liver diseases—conditions like Wilson's disease, hereditary hemochromatosis, and others that run in families. Researchers collect your medical history, blood samples, and imaging reports to build a large database. Over time, this information helps doctors understand these diseases better and develop better treatments.
Inherited liver diseases are rare and complex, and doctors need more information to diagnose and treat them effectively. By gathering data from many patients across China, researchers can identify patterns, improve diagnosis, and find better ways to care for people with these conditions.
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When you join, you'll provide your medical history, current medications, and allow researchers to take blood samples for testing and research. You'll also share results from any imaging or lab tests you've had. After that, you'll be followed up every 6 to 12 months with visits where your doctors check your progress, run new blood tests if needed, and record how you're doing. Throughout the study, you'll receive standard medical care from your hospital's specialists.
AI-generated summary from trial data · Jun 15, 2026 · Not medical advice
China