Global registry tracking bleeding disorder patient experiences worldwide

The World Bleeding Disorders Registry is a long-term study collecting health information from people diagnosed with hemophilia A, hemophilia B, or von Willebrand disease at participating treatment centers around the world. By gathering data from thousands of patients across more than 50 countries, researchers hope to better understand how these conditions affect people's lives and what treatments work best in real-world settings.

Right now, doctors and researchers don't have enough information about how bleeding disorders affect patients globally and how different treatment approaches work in different parts of the world. This registry aims to fill that gap by collecting real-world experiences and outcomes from diverse patient populations, which can help improve care for everyone with these conditions.