Plain-English translation of NCT03489278 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
CAPTURE-ALS is a research study that collects information from the medical records of patients with ALS (also called Lou Gehrig's disease) and related disorders. Instead of testing a new medication, researchers are gathering detailed clinical information over time to better understand how these diseases affect people and how they progress. This information will help future research efforts.
Doctors and researchers need a better understanding of how ALS and related diseases develop and change over time in real patients. By collecting this information in a systematic way from multiple medical centers, researchers can identify patterns and learn more about what causes disease progression, which could eventually lead to better treatments.
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If you join this study, researchers will access and review your existing medical records from the clinical center where you receive care. You don't need to take any medications or visit the hospital for study-specific appointments — this study simply involves allowing your doctors to share your medical information with researchers in a secure way. Your participation helps build a valuable database that many future ALS studies will use.
AI-generated summary from trial data · Jun 1, 2026 · Not medical advice
United States