Plain-English translation of NCT03786549 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our Sickle Cell Disease research guide →This study doesn't follow the usual testing phases — it may be an observational study or a different type of research.
This trial is testing a new support program designed specifically for teenagers with sickle cell disease who are transitioning from pediatric (children's) doctors to adult doctors. The program includes education about your disease, psychological support to help manage pain, and help connecting you with social services — all while involving your parents or guardians. The goal is to keep you healthier and reduce dangerous complications that require hospitalization.
When teenagers with sickle cell disease move from pediatric to adult care, they often miss appointments, skip medications, and experience more serious health crises. This trial exists because researchers believe a coordinated support program involving education, mental health support, and family involvement can help smooth this difficult transition and keep young people healthier.
You likely qualify if…
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You and your parent or guardian will be randomly assigned to either the usual care group or the new support program group. If you're in the support program, you'll participate in three types of interventions over 24 months: family education sessions at home, individual psychological support to help manage pain, and group meetings focused on connecting you with social services and resources. The research team will then track your health for two years to see if you have fewer hospitalizations and serious complications compared to the usual care group.
AI-generated summary from trial data · Jun 3, 2026 · Not medical advice
France