Plain-English translation of NCT03949972 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This is a research registry that brings together patients with focal segmental glomerulosclerosis (FSGS) or minimal change disease (MCD)—two serious kidney conditions that cause protein loss and swelling. Researchers will collect your medical history, treatment information, and biological samples (blood, urine, tissue) to understand why these diseases develop, how they progress, and what helps patients recover.
These kidney diseases are rare and affect people very differently, making it hard for doctors to know the best ways to treat them. By collecting information and samples from many patients in one place, researchers hope to discover patterns that explain who responds well to treatment and what complications patients might face.
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You will have an initial visit where researchers collect detailed information about your medical history, current symptoms, and treatments, plus take samples of blood, urine, and possibly tissue. You'll also be asked about your quality of life and any other health conditions. After that, you'll attend follow-up visits where additional information and samples may be collected, allowing doctors to track your disease course over time. Your kidney biopsy tissue will be digitized and studied by specialists to better understand the microscopic changes in your kidneys.
AI-generated summary from trial data · Jun 3, 2026 · Not medical advice
Germany