Plain-English translation of NCT04008329 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This is a long-term observational study that follows people diagnosed with amyotrophic lateral sclerosis (ALS) and related motor neuron diseases. Researchers will track how your condition changes over time and collect genetic information to better understand what factors influence disease progression. The goal is to identify patterns that could help improve treatment options in the future.
Currently, there are no effective treatments for ALS, and the disease affects people very differently. By following patients over time and studying their genetics, researchers hope to discover what causes some people's disease to progress faster than others — information that could eventually lead to better therapies.
You likely qualify if…
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As a participant, you would share your medical information and allow researchers to monitor how your condition develops over time. You may be asked to provide blood or tissue samples for genetic testing. The study involves regular check-ins with the research team, but the exact schedule and location would be discussed with you at enrollment.
AI-generated summary from trial data · Jun 1, 2026 · Not medical advice
China
Enrollment target
~2,000 participants
Started
July 2019
Primary completion
July 2029
Last updated on clinicaltrials.gov in March 2021.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Qi-Jie Zhang, PhD
First Affiliated Hospital of Fujian Medical University
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.