Tracking how rare severe pustular psoriasis changes over time

This is a long-term study that tracks people living with rare, severe forms of pustular psoriasis—a condition where painful pustules appear on the skin. Researchers want to understand how this disease develops and changes over time, and how well existing treatments work for different people. You would be part of an international network of patients sharing your medical information and disease experiences.

Pustular psoriasis is rare and severe, and doctors don't yet fully understand how the disease progresses or which treatments work best for different patients over the long term. This study aims to fill that gap by following many patients carefully over five years.