Plain-English translation of NCT04454892 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Researchers want to learn more about how ALS develops and progresses in people living in mainland China. By following 3,000 patients over time and collecting information about their symptoms and disease course, scientists hope to understand ALS better and improve diagnosis and treatment options for future patients.
While treatments have improved and people with ALS are living longer than they did 20 years ago, doctors still don't fully understand what causes ALS or how it affects different people. This study will gather detailed information from a large group of patients to fill important gaps in knowledge about the disease.
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As a participant, you would be followed over time by your medical team at the hospital where you receive ALS care. Researchers will collect information about your symptoms, how your disease is progressing, and your medical history. You will need to be willing to return for regular follow-up visits and share your health information with the study team.
AI-generated summary from trial data · Jun 1, 2026 · Not medical advice
China
Enrollment target
~3,000 participants
Started
November 2019
Primary completion
December 2030
Last updated on clinicaltrials.gov in July 2020.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Lu Tang, Msc
Peking University Third Hospital
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.