Plain-English translation of NCT04806295 on ClinicalTrials.gov โ ยท Source last updated ยท Translation generated ยท How we translate trials
The Leukemia and Lymphoma Society National Research Registry is a database that gathers medical information from people with blood cancer โ before, during, and after treatment. Researchers use this data to understand how people with blood cancer are doing in real life and to find ways to improve treatments. Your participation helps advance science without testing a new medication.
Most research studies follow a small group of patients in controlled settings, but doctors also need to understand how people with blood cancer fare in everyday life. This registry fills that gap by collecting real-world experiences and outcomes so researchers can answer important questions about blood cancer treatment and care.
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You would give permission for your medical records to be gathered (either through a third-party service at no cost to you, or by uploading them yourself). Researchers would review your information and may contact you from time to time to ask for updated medical information. Your personal details like name and address would be removed before your data is shared with research partners, so your privacy is protected.
AI-generated summary from trial data ยท Aug 5, 2026 ยท Not medical advice
United States
Enrollment target
~1,000 participants
Started
July 2017
Primary completion
July 2027
Age range
21 Years and older
Last updated on clinicaltrials.gov in April 2022.
Reach out to the team running this trial. Response times vary โ some teams are faster than others.
Central contact
Larry Saltzman, MD
Blood Cancer United
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first โ no email needed to get started.