Plain-English translation of NCT04839003 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our AL Amyloidosis research guide →This is a registry — a long-term database — that collects medical information from people with AL amyloidosis. Researchers will use this real-world data to better understand how the disease develops, how different treatments affect patients, and what patterns predict how someone's condition may change over time. By sharing your medical history and follow-up information, you help build knowledge that may improve care for patients with this rare condition.
AL amyloidosis is rare and complex, and doctors need better tools to predict how it will progress in individual patients and to measure whether treatments are working. This registry fills that gap by collecting consistent data from many patients over time, which helps researchers understand patterns and develop better ways to monitor and predict outcomes.
You likely qualify if…
You likely don't qualify if…
You would allow the research team to collect and store your medical information — including test results, treatment details, and how you respond to care — both at the time of your diagnosis and during your regular follow-up visits at the participating center. The study is observational, meaning you continue with your normal medical care and treatment plan; the researchers simply gather and analyze your existing medical data to track patterns and outcomes over time.
AI-generated summary from trial data · Aug 20, 2026 · Not medical advice
Italy
Sponsor
Fondazione IRCCS Policlinico San Matteo di Pavia
Enrollment target
~5,000 participants
Started
February 2020
Primary completion
May 2027
Age range
18 Years – 99 Years
Last updated on clinicaltrials.gov in April 2026.
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.