Plain-English translation of NCT04848844 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
ARTORIA-R is an international registry—essentially a research database—that collects medical information from adults with congenital heart disease (heart problems present from birth) who need or have received a heart transplant. Researchers are gathering information about these patients' health histories, test results, treatments, and outcomes over many years and across 18 countries. By studying patterns in this large group, doctors hope to better understand what helps patients survive and thrive while waiting for or after receiving a transplant.
Many adults born with congenital heart disease now live long enough to need a heart transplant, but we still don't know enough about which patients do best, what medical care works most effectively, or how to predict outcomes while someone is waiting. This study exists to collect that missing information so doctors can make better decisions about who gets transplanted and how to care for them before and after surgery.
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Participation is passive and non-invasive—your doctors will simply share your existing medical records with the research database, and this sharing happens once when you are evaluated or listed for transplant. The researchers may update your information annually to track what happens to you (whether you receive a transplant, improve, or face complications), but you won't need to attend extra appointments or undergo additional tests beyond your normal transplant care.
AI-generated summary from trial data · Jun 2, 2026 · Not medical advice
Germany