Plain-English translation of NCT04848844 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
ARTORIA-R is an international registry — essentially a large database — that collects anonymized medical information from adults with congenital heart disease (heart conditions present from birth) who need heart transplants. Researchers from 18 countries are gathering data from 1989 to present, and will continue to update it yearly. The goal is to understand which factors help predict whether patients will survive on the waiting list and do well after transplantation.
Adults with congenital heart disease who need transplants face serious risks while waiting, and doctors don't have enough information about what determines the best outcomes for this group. By collecting detailed information from many patients and hospitals across the world, this registry will help doctors make better decisions about who should be prioritized for transplants and how to care for patients before and after surgery.
You likely qualify if…
You likely don't qualify if…
Your participation is simple — you don't need to visit the hospital extra times or take any special medications. Your transplant center will share your existing medical records (anonymized so they don't include your name or identifying information) with the international registry. This includes information from when you were first evaluated for transplant, while you're on the waiting list, and after transplant if you receive one. Your data will be updated once per year in July, and your hospital will continue sharing this information as long as you're part of the program.
AI-generated summary from trial data · Jul 11, 2026 · Not medical advice
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