Plain-English translation of NCT05067179 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This study is building a registry — a central database — of information from people living with ALS. Researchers will collect your medical records, exam results, test results, and MRI brain scans to track how your disease progresses over time. Some participants may also choose to donate brain, spinal cord, nerve, and muscle tissue after death for detailed laboratory study.
ALS is a serious disease that affects nerve and muscle function, and doctors still don't fully understand what causes it or how to stop it. By studying tissues and tracking disease progression in living patients, researchers hope to discover new insights that could lead to better treatments.
You likely qualify if…
You likely don't qualify if…
You will be asked to share information during your regular doctor visits (in person, by phone, or online) and to sign consent forms for two separate parts of the study. First, researchers will collect your medical exam results, nerve tests, and other standard care information, plus schedule an MRI brain scan. Second, you can separately choose whether to consent to tissue donation after death, which researchers would use for laboratory analysis. There is no set time commitment — participation involves sharing existing medical information and undergoing one MRI scan.
AI-generated summary from trial data · Jun 1, 2026 · Not medical advice
United States
Tanabe Pharma America, Inc.
Enrollment target
~40 participants
Started
September 2020
Primary completion
January 2030
Age range
18 Years – 90 Years
Last updated on clinicaltrials.gov in September 2025.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Ayo Fasawe
University of Illinois at Chicago
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.