European registry tracking heart disease from rare protein buildup

The HEAR registry is a large European study that gathers medical information from patients with cardiac amyloidosis, a rare disease where abnormal proteins accumulate in the heart and other organs. Researchers will review past medical records, current patient information, and follow patients over time to better understand how this disease develops and affects people. By collecting this real-world data, doctors hope to find better ways to diagnose and treat the condition earlier.

Cardiac amyloidosis is often diagnosed very late because doctors don't have simple, reliable tools to catch it early. This delay makes the disease much harder to treat and worsens patients' health and quality of life. This registry aims to help doctors recognize the disease sooner and develop better diagnostic tests and treatment strategies.