Plain-English translation of NCT05139290 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This study doesn't follow the usual testing phases — it may be an observational study or a different type of research.
This research study wants to understand how African American adult daughters and their parents with memory loss (dementia or Alzheimer's disease) make important healthcare decisions together. Researchers will ask you about your experiences through surveys and interviews to learn what works well and what's challenging. The goal is to create a new program designed specifically for African American families to improve how these decisions are made and reduce stress for both parents and caregivers.
Healthcare decisions for dementia can be overwhelming and confusing, especially when there are cultural differences in how families communicate and make choices. This research recognizes that African American families may face unique challenges and deserve support tailored to their values and needs.
You and your parent would complete surveys and join video interviews (via Zoom) where researchers ask about your experiences making healthcare decisions together. Some participants may also join focus group discussions with other families. All interviews happen remotely, and your answers are kept private. The study happens over time in phases, so you may be asked to participate in different parts depending on your family's situation.
AI-generated summary from trial data · Jul 13, 2026 · Not medical advice
United States