Plain-English translation of NCT05153967 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our Sickle Cell Disease research guide →This study is tracking the long-term health outcomes of people with sickle cell disease who have received curative treatments like stem cell transplants or gene therapy. Researchers want to understand how these treatments affect heart, lung, and kidney function over time, and to identify any serious side effects that may develop years after treatment. This information will help doctors personalize treatment choices and help future patients make informed decisions.
Curative treatments for sickle cell disease are new and exciting, but we don't yet know all the long-term health effects they may cause. Some serious complications have already started to appear in patients years after treatment. This study exists to measure both the benefits and risks of these treatments so doctors can better understand who should receive them and how to monitor patients long-term.
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If you join this study, you will share your medical records and health information with the research team — both information from before you received any curative treatment and ongoing information afterward. The study will track your lung function, heart health, and kidney function over time through data sharing rather than requiring you to travel to the hospital for extra visits. Researchers at multiple medical centers will follow participants for several years to understand how these treatments affect your health long-term.
AI-generated summary from trial data · Aug 2, 2026 · Not medical advice
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