Plain-English translation of NCT05329714 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
PVRI-GoDeep is a worldwide registry that combines anonymous medical information from pulmonary hypertension patients across many countries and medical centers. By bringing together detailed patient data from different parts of the world, researchers can better understand how this lung disease affects different populations and develop more personalized treatment approaches. Your information would be merged with data from thousands of other patients to help advance scientific research.
Pulmonary hypertension is a serious condition affecting the blood vessels in the lungs, but doctors still don't fully understand why it develops differently in different people and regions. By collecting and analyzing detailed information from many patients worldwide, researchers hope to uncover new insights about the disease and create better, more tailored treatments for individual patients.
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As a participant, you would allow researchers to use your anonymized medical information — such as test results, diagnoses, and treatment details — from your pulmonary hypertension care. Your data would be combined with information from other patients at participating medical centers around the world in a secure database. There are no experimental medications or procedures; instead, researchers simply review your existing medical records to learn more about the disease.
AI-generated summary from trial data · Jun 5, 2026 · Not medical advice
Germany
Imperial College London, Johns Hopkins University
Enrollment target
~40,000 participants
Started
January 2020
Primary completion
January 2050
Last updated on clinicaltrials.gov in April 2025.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Raphael W Majeed
University of Giessen
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.