Plain-English translation of NCT05336760 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This study is watching how swallowing problems develop in people with amyotrophic lateral sclerosis (ALS) over time. Researchers want to understand how these swallowing difficulties affect your quality of life and how you feel about potentially getting a feeding tube (called a PEG tube) to help with nutrition. The study also wants to learn what matters most to patients and their families when making these important decisions.
Many people with ALS experience swallowing difficulties as their disease progresses, and doctors need better information about how this affects daily life and decision-making. By understanding patient experiences and attitudes, doctors can have better conversations with patients and families about feeding tube options and help them make choices that are right for them.
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You and a close relative would visit the study site every 3 months for about 60 minutes. During each visit, doctors would test your swallowing ability and you would complete questionnaires about your quality of life and your feelings about feeding tubes. These visits would continue until you decide to get a feeding tube, allowing researchers to closely track how your swallowing changes over time and how your thoughts and feelings evolve.
AI-generated summary from trial data · Jun 1, 2026 · Not medical advice
Slovenia
Sponsor
University Rehabilitation Institute, Republic of Slovenia
Collaborators
University Medical Centre Ljubljana
Enrollment target
~60 participants
Started
January 2023
Primary completion
March 2026
This trial's estimated completion date has passed — the record may not be fully up to date.
Age range
18 Years and older
Last updated on clinicaltrials.gov in October 2024.
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Central contact
Metka Moharić, MD, PhD
University Medical Centre Ljubljana
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.