Plain-English translation of NCT05336760 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This study is designed to follow people with ALS (a disease that gradually affects nerve and muscle function) as their ability to swallow changes over time. Researchers want to understand how swallowing difficulties impact quality of life and what people with ALS think about feeding tubes as an option. The study will also ask close relatives about their perspectives on these decisions.
Many people with ALS develop swallowing problems as the disease progresses, and doctors don't fully understand how this affects overall quality of life or how patients and families feel about feeding tube options. This research aims to fill that gap and help doctors better support people with ALS and their families through these decisions.
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If you join, you'll visit the study site every 3 months for about 60 minutes. During each visit, researchers will test your swallowing ability and ask you to complete questionnaires about your quality of life and feelings about feeding tube options. Close relatives may also be asked to share their perspectives. This continues every 3 months until you choose to have a feeding tube inserted, if needed.
AI-generated summary from trial data · Jun 19, 2026 · Not medical advice
Slovenia
University Rehabilitation Institute, Republic of Slovenia
Collaborators
University Medical Centre Ljubljana
Enrollment target
~60 participants
Started
January 2023
Primary completion
September 2026
Age range
18 Years and older
Last updated on clinicaltrials.gov in June 2026.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Metka Moharić, MD, PhD
University Medical Centre Ljubljana
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.