Plain-English translation of NCT05383911 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our Sickle Cell Disease research guide →This study doesn't follow the usual testing phases — it may be an observational study or a different type of research.
This study is testing a new way to help teenagers and young adults with sickle cell disease make treatment decisions together with their doctors and families. Researchers want to see if using special decision-making tools — including virtual reality education in some locations — helps young people feel more confident and informed when choosing disease-fighting treatments. The goal is to make sure your voice and preferences matter in your own care.
Many young people with sickle cell disease face important treatment choices, but they may not always feel heard or fully understand their options. This study exists to create better tools that help teenagers and young adults take an active role in these decisions alongside their doctors and families.
You likely qualify if…
You likely don't qualify if…
You and a parent or caregiver will meet with your sickle cell care team at a clinic visit where you'll be introduced to decision-making tools designed to help you understand your treatment options. Depending on which Nemours location you visit, you may use virtual reality education or review printed and video materials to learn about available treatments. You'll be interviewed about your experience to help researchers understand whether these tools are helpful and easy to use.
AI-generated summary from trial data · Jun 9, 2026 · Not medical advice
United States