Plain-English translation of NCT05413291 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This is a registry study designed to gather health information from people who have or may have a movement disorder—like Parkinson's disease or tremor—as well as their family members. Instead of testing a new medication or procedure, researchers will simply collect data from your regular medical care visits and store it for future research. This information will help scientists better understand movement disorders and develop better treatments down the road.
Researchers need a large, detailed database of patient information to spot patterns, improve diagnosis, and design better treatments for movement disorders. By collecting this data over time from many people, scientists can learn more about how these conditions develop and progress.
You likely qualify if…
You likely don't qualify if…
You won't need to do anything special or visit the research center for experimental procedures. Instead, researchers will collect information from your regular doctor's visits and medical records—data you're already sharing with your healthcare team. Your family members may also be asked to provide some health information. This is an ongoing study, so researchers may continue to collect your data over time as part of the natural history registry.
AI-generated summary from trial data · Jul 16, 2026 · Not medical advice
United States
Enrollment target
~4,000 participants
Started
October 2022
Primary completion
December 2030
Age range
2 Years – 100 Years
Last updated on clinicaltrials.gov in June 2026.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Vivian S Koo
National Institute of Neurological Disorders and Stroke (NINDS)
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.