Building a kidney disease research database with patient information

The KidneyCARE Study is building a large national registry—a database of health information—from people living with kidney disease at all stages, including those on dialysis or who have received a kidney transplant. You would share your medical records and health information (with your permission), which researchers can then use to study kidney disease patterns and improve care. No experimental medications or procedures are involved; this is purely about collecting information to advance kidney disease research.

Researchers need real-world information from many kidney disease patients to understand how the disease affects different people, what treatments work best, and where care can be improved. By gathering this data in one central place, scientists and doctors can spot patterns and develop better strategies to help people with kidney disease.