Research registry for a rare hereditary stroke condition

This is a research registry — essentially a contact list — for people affected by or at risk for CADASIL, a rare inherited condition where blood vessels in the brain become damaged over time, leading to strokes and cognitive changes. Researchers led by Dr. Jane Paulsen use this registry to identify and reach out to people who might qualify for future CADASIL research studies. Your information helps connect you with studies that could advance understanding and treatment of this condition.

CADASIL is a rare genetic condition that affects relatively few people, making it hard for researchers to find study participants. This registry solves that problem by creating a centralized, organized list of interested individuals, helping researchers conduct the studies needed to develop better treatments and care for people living with this disease.