Plain-English translation of NCT05676099 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This is a long-term research project that collects blood and tissue samples from people diagnosed with tuberous sclerosis complex or a related lung condition called sporadic lymphangioleiomyomatosis. Your samples and health information will be stored safely in a central biobank and shared with researchers who are working to better understand these conditions and develop new treatments. This study aims to enroll up to 5,000 participants over time.
Tuberous sclerosis and related conditions can affect many parts of the body—including the brain, kidneys, heart, lungs, and skin—but we still need a better understanding of how these diseases develop and progress. By collecting samples and health data from many people, researchers hope to discover new ways to treat and manage these conditions more effectively.
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You can provide samples at a TSC clinic, at home, at an educational meeting, or through a mobile phlebotomy service—whatever is most convenient for you. You'll provide a blood sample (and possibly tissue samples) and share your health history and medical records with the researchers. The researchers will follow your health information over time as part of a long-term study to track how tuberous sclerosis and related conditions progress.
AI-generated summary from trial data · Jun 25, 2026 · Not medical advice
United States