Plain-English translation of ·
This study doesn't follow the usual testing phases — it may be an observational study or a different type of research.
This study is testing whether an online educational website can help people with cystic fibrosis and their loved ones learn about lung transplant as a possible treatment option. Some participants will have access to this specially designed website for three months, while others will not, so researchers can see whether the website helps people feel more prepared and informed about this major decision.
Many people with cystic fibrosis who could benefit from lung transplant never get referred for it—sometimes because they don't have enough information, or because patients and their caregivers feel unprepared to make such a big decision. This study aims to close that gap by providing education that helps patients and their support networks have better conversations about transplant earlier on.
You likely qualify if…
You likely don't qualify if…
You will either receive access to an online educational website about lung transplant for three months, or you will be in a comparison group without website access. You will likely complete surveys before and after the three-month period to share your thoughts about lung transplant knowledge and how prepared you feel to make decisions about it. The study is looking at how caregivers' needs are met during this learning process.
AI-generated summary from trial data · Jun 3, 2026 · Not medical advice
United States