Plain-English translation of NCT06035939 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our Sickle Cell Disease research guide →This study doesn't follow the usual testing phases — it may be an observational study or a different type of research.
This trial is testing SMYLS, a mobile app designed to help teenagers and young adults with sickle cell disease learn to manage their condition better. Half of participants will use the app to build self-care skills, while the other half will receive standard care. The study will measure whether using the app helps young people feel better, manage pain, and take more control of their health.
Sickle cell disease is challenging to manage, especially as young people transition from teenage years to adulthood. Researchers believe a mobile app could help teens and young adults develop the skills and confidence they need to take an active role in their own care.
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If you join this study, you will be randomly assigned to either use the SMYLS app or receive standard care. If you get the app, you'll use it on your phone to learn self-management skills for your sickle cell disease. Researchers will check in with you throughout the study to see how you're doing, track your pain levels, healthcare visits, and overall quality of life. The study lasts about 12 months, and most activities happen through your phone or at regular clinic visits.
AI-generated summary from trial data · Jun 6, 2026 · Not medical advice
United States
Sponsor
Medical University of South Carolina
Collaborators
National Institute of Nursing Research (NINR)
Enrollment target
~272 participants
Started
April 2024
Primary completion
July 2027
Age range
14 Years – 21 Years
Last updated on clinicaltrials.gov in December 2025.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Shannon Phillips, PhD, RN
Medical University of South Carolina
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.