Plain-English translation of NCT06065852 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
The National Registry of Rare Kidney Diseases (RaDaR) is a large database that collects information from patients with rare kidney conditions across the UK. By gathering medical records and samples from thousands of people, researchers can better understand these uncommon diseases and identify which patients might be good candidates for new treatments. This registry connects isolated patients with rare kidney problems so their experiences can be studied together, rather than scattered across individual hospitals.
Rare kidney diseases are so uncommon that individual hospitals rarely see enough patients to study them effectively. Without a way to bring patient information together, doctors struggle to understand how these diseases progress, what treatments work best, and how to develop new therapies. This registry solves that problem by creating a central hub where clinical experience can be pooled across the entire country.
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Once you enroll, you will share your medical records and information about your kidney disease with the research team. Depending on your specific rare disease group, you may also be asked to donate a biological sample (like blood or urine) for future research. The study is ongoing, so you may be asked for updated medical information periodically, but participation is flexible and adapted to your individual condition.
AI-generated summary from trial data · Jun 4, 2026 · Not medical advice
United Kingdom