Plain-English translation of NCT06089902 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
The EURO AAOCA Registry is collecting medical information from patients diagnosed with anomalous aortic origin of coronary arteries—a heart condition where the blood vessels supplying the heart start from an abnormal location. Researchers across Europe are gathering detailed information about symptoms, test results, treatments, and long-term outcomes to better understand how this condition should be managed. Your medical records and clinical details will help doctors learn what works best for patients like you.
Doctors don't yet have enough large-scale data to know the best way to care for patients with this heart condition. By collecting experiences from hundreds of patients across many centers, researchers hope to develop clearer guidelines for who needs surgery, how to monitor the condition, and how to prevent serious complications like sudden cardiac death.
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You will work with researchers at your hospital or clinic to provide detailed medical information through an online database. This includes your baseline medical history, symptoms, imaging test results, any surgical or non-surgical procedures you've had, and follow-up information over time. Most of your information will come from your existing medical records—you won't need to undergo new experimental treatments, just allow your care team to document your condition and progress.
AI-generated summary from trial data · Jul 7, 2026 · Not medical advice
Italy
Switzerland
Sponsor
University of Padova
Collaborators
IRCCS Policlinico S. Donato, Mitera Children's Hospital, Athens Heart Surgery Institute, Greece
Enrollment target
~500 participants
Started
January 2019
Primary completion
January 2025
This trial's estimated completion date has passed — the record may not be fully up to date.
Last updated on clinicaltrials.gov in October 2023.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Massimo Padalino, MD PhD
University of Padova
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.