Plain-English translation of NCT06228001 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This trial is testing a new device called Actimyo—two watch-like sensors worn on the wrists or ankles—to see if it can accurately measure how movement changes over time in people with ALS. The sensors record movement patterns in detail, and researchers want to understand whether this information could help doctors monitor disease progression more precisely. The study involves standard clinical visits where you'll complete walking tests, strength measurements, and questionnaires alongside wearing the sensors.
Currently, doctors rely on clinical exams and patient reports to track how ALS affects movement and function. This trial aims to see whether wearable sensors could provide more objective, detailed measurements of movement changes—potentially helping doctors catch disease progression earlier and design better treatment plans.
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You will attend clinic visits where researchers will examine your strength and muscle tone using standard tests. During these visits, you'll complete a six-minute walking test, have your muscle strength measured with equipment, and may undergo electromyography (a test that records electrical activity in muscles). You'll also wear the Actimyo sensors—two watch-like devices on your wrists or ankles—which continuously record your movement patterns at home and during daily life. You'll fill out questionnaires about swallowing and daily function, and researchers will track how your movement and symptoms change over time.
AI-generated summary from trial data · Jun 7, 2026 · Not medical advice
Belgium
Egypt
Sponsor
Centre Hospitalier Universitaire de Liege
Collaborators
SYSNAV
Enrollment target
~30 participants
Started
May 2023
Primary completion
January 2028
Age range
18 Years and older
Last updated on clinicaltrials.gov in May 2025.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Laurie Medard
Centre de référence des maladies neuromusculaire, Centre Hospitalier Régional de la Citadelle
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.