Plain-English translation of NCT06250595 on ClinicalTrials.gov ↗ ·
The European Rare Blood Disorders Platform (ENROL) is building a large database of medical information from patients across Europe who have rare blood disorders — including inherited anemia, bone marrow failures, bleeding disorders, iron metabolism disorders, and blood cancers. By collecting and connecting data from different hospitals and registries, researchers hope to better understand how common these diseases are, how they progress over time, and what treatments work best.
Rare blood disorders are difficult to study because patients are spread across many countries and hospitals, making it hard for doctors to learn from each other's experiences. This registry aims to solve that problem by creating one shared database that helps researchers identify which patients might benefit from new treatments and gives doctors the information they need to allocate resources and plan better care.
You likely qualify if…
You likely don't qualify if…
If you join, your medical information — including your diagnosis, genetics, symptoms, and treatments — will be collected at the time you enroll and then checked again every 12 months. This is not a treatment study; instead, your doctors will share information about your care with the registry, and researchers will use this pooled data from thousands of patients across Europe to better understand rare blood disorders and improve future care. You would not need to take any new medications or undergo any new procedures specifically for this study.
AI-generated summary from trial data · Jun 3, 2026 · Not medical advice
Spain