Plain-English translation of NCT06301893 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
Read our Sickle Cell Disease research guide →This study is collecting small blood samples from children across all districts of Uganda to find out how many people have sickle cell disease or sickle cell trait, and where these conditions are most common. Researchers will use these samples to create a map showing the spread of sickle cell disease throughout the country and understand how it relates to other health conditions like malaria and HIV.
Sickle cell disease is a serious inherited blood disorder, but many people in Uganda don't know if they have it or carry the trait. By mapping where sickle cell disease and trait are most common, doctors and health officials can better plan care and educate communities about this condition.
You likely qualify if…
You likely don't qualify if…
If you or your child is eligible, a small blood sample will be collected on a special paper card (called a dried blood spot). This is a routine procedure done at health clinics during standard HIV testing visits. The sample is then sent to a laboratory in Kampala where it will be analyzed to check for sickle cell disease and sickle cell trait. There are no follow-up visits or ongoing treatment—just the one blood sample collection.
AI-generated summary from trial data · Jun 17, 2026 · Not medical advice
Uganda
Sponsor
Children's Hospital Medical Center, Cincinnati
Collaborators
Makerere University, Ministry of Health, Uganda
Enrollment target
~1,000,000 participants
Started
September 2013
Primary completion
December 2030
Last updated on clinicaltrials.gov in June 2026.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Teresa Latham, MA
Children's Hospital Medical Center, Cincinnati
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.