Plain-English translation of NCT06380192 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This research study is building a database of medical information from patients diagnosed with Developmental and Epileptic Encephalopathy (DEE)—rare childhood conditions that combine seizures with developmental delays. By gathering and reviewing medical records from many patients across France, researchers hope to identify patterns and biomarkers that will help doctors better understand how these conditions progress and which treatments work best for different types.
Right now, there are no clear guidelines for managing these rare childhood seizure disorders because doctors don't have enough information about how they evolve in different patients. This study aims to change that by creating a comprehensive picture of these conditions, so doctors can eventually offer more personalized and effective care based on each child's specific type of disease.
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Participation in this study is straightforward—you won't need to attend clinic visits or take any new medications. Instead, researchers will review your existing medical records, test results, and hospital visits to understand your condition's history and how it has changed over time. The study is looking back at information you've already received as part of your regular medical care.
AI-generated summary from trial data · Jun 4, 2026 · Not medical advice
France