Helping sickle cell patients reconnect with specialist care

This study is designed to help people with sickle cell disease who are not currently receiving care from a specialist get connected back into the health system. Researchers will use three different methods to find eligible patients and then assign each person a trained care coordinator—someone who will work with them one-on-one to remove barriers and help them engage with sickle cell specialist care.

Many people with sickle cell disease have lost touch with their specialists and aren't getting the care they need, but no one has systematically studied how to find and help these patients. This study aims to figure out which strategies work best for different groups of people so that successful methods can be expanded across the country.