Understanding how doctors treat a heart and nerve protein disease

This study is collecting real-world information about how patients with transthyretin amyloidosis—a rare disease where abnormal proteins build up in the heart, nerves, or both—are being treated and how they fare over time. Researchers will gather this information from your regular doctor visits and medical records to better understand treatment patterns and outcomes for this condition.

Transthyretin amyloidosis is a serious but rare disease, and doctors need more information about how different patients respond to current treatments and what their long-term outcomes look like. By collecting real-world data from many patients across different countries, researchers hope to improve how this disease is diagnosed, treated, and managed.