Plain-English translation of NCT06573723 on ClinicalTrials.gov ↗ · Source last updated · Translation generated · How we translate trials
This is a registry study — essentially a organized database — where Hospital Italiano de Buenos Aires collects information from patients with rare diseases. The goal is to gather medical information from many patients in one place so researchers can learn more about how these conditions develop, progress, and respond to treatment.
Rare diseases are hard to study because so few people have them, and their information is scattered across different hospitals and clinics. By creating a centralized database, doctors can spot patterns, understand risk factors, and improve how patients are diagnosed and treated.
You likely qualify if…
You likely don't qualify if…
If you enroll, doctors will gather and store information from your medical records — your diagnosis, symptoms, test results, treatments, and how you've responded to them over time. This is not a treatment study, so you won't receive new medication as part of the registry. Your information becomes part of a larger database that researchers use to understand these diseases better and potentially develop better treatments in the future.
AI-generated summary from trial data · Jun 7, 2026 · Not medical advice
Argentina
Sponsor
Hospital Italiano de Buenos Aires
Enrollment target
~380 participants
Started
July 2024
Primary completion
December 2034
Last updated on clinicaltrials.gov in January 2026.
Reach out to the team running this trial. Response times vary — some teams are faster than others.
Central contact
Maria Lourdes Posadas Martinez, PhD
HIBA
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first — no email needed to get started.