Exercise Training to Improve Balance in Rare Muscle Disorders

This study is testing whether a personalized exercise program—designed specifically for you and your condition—can help improve your balance and physical function if you have one of three rare neuromuscular disorders: Charcot-Marie-Tooth disease, Facioscapulohumeral muscular dystrophy, or myotonic dystrophy type 1. Researchers want to see if four months of guided, tailored exercise is more effective than standard medical follow-up alone. They'll measure improvements in balance, strength, activity levels, and quality of life.

People with these rare muscle disorders often struggle with balance and weakness, which can affect daily activities and independence. While exercise is known to be helpful, there isn't strong evidence yet about the best way to design exercise programs for these specific conditions. This study aims to fill that gap.