Plain-English translation of NCT06792396 on ClinicalTrials.gov โ ยท Source last updated ยท Translation generated ยท How we translate trials
This study is looking back at the medical records of children who have been diagnosed with Electrical Status Epilepticus in Sleep โ a rare condition where seizure activity happens mainly during sleep and can affect brain development. Researchers want to understand how this condition is diagnosed, what treatments work best, and what the long-term outcomes are for children who have it. By carefully reviewing past medical records, they hope to learn better ways to help children with this condition.
Very little is known about this rare condition because it affects relatively few children. By studying what has already been documented in medical records, doctors can identify patterns in how it starts, how it's diagnosed, and how children do over time โ information that could help improve care for future patients.
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You would not need to visit the hospital or do anything new. Researchers will review your existing medical records that are already stored in the hospital system, looking at information like when your condition started, what symptoms you had, what tests were done, and how you responded to treatment. Your information will be kept private by using a random study number instead of your name, and only hospital staff caring for you will know it's your records. The study is purely a review of past medical information.
AI-generated summary from trial data ยท Jun 1, 2026 ยท Not medical advice
United Kingdom
Sponsor
East Suffolk and North Essex NHS Foundation Trust
Enrollment target
~20 participants
Started
August 2024
Primary completion
March 2025
This trial's estimated completion date has passed โ the record may not be fully up to date.
Age range
1 Year โ 16 Years
Last updated on clinicaltrials.gov in January 2025.
Reach out to the team running this trial. Response times vary โ some teams are faster than others.
Central contact
Thiloka Ratnaike
East Suffolk and North Essex NHS Foundation Trust
Tell us you're interested and we'll help connect you with the research team. We'll walk you through what to expect first โ no email needed to get started.